Day +7, Tuesday
Kara's Mom again, sorry for the lack of updates. Each day has been getting worse with the mucositis and her mouth/digestive tract. I won't go into details but it is BAD. Each day when the doctor comes in he says "it will be worse tomorrow" and I am thinking how can it get any worse?? But it happens....I feel so helpless as her mother watching her in pain but there is absolutely nothing I can do. A few more days though and she should gradually begin to feel better as her sister's cells start grafting. Hopefully soon she will feel like posting updates again.
6 comments:
Dear Lynda,
Please, please, tell Kara we are all thinking of her. It'll take some time, but once she bottoms out, you're absolutely right. Those counts, and her cells will begin to engraft.
Please remind her, she is stronger than she thinks. She WILL get through this.
Sending you two, and the rest of your family, so much love,
Bekah
thank you for keeping us updated on kara's progress. i know it's hard to view things as "progress" at this time...but it is. some day hopefully very, very soon, the worst will be past.
lots of prayers and love to you all. and like bekah has already said, please tell kara that she has so many who love her and are thinking of her often.
Kara and family,
Dori told me about your fight, and we are moved. Dori has been through so much and will share that soon with you on 11 North.
Trust in yourselves, your doctors and nurses, and mostly the Good Lord. We will be thinking of you and saying our prayers you will be home soon.
Jim (Dori's husband)
http://runfordori.blogspot.com/
Hi Lynda,
The helplessness is horrible. The days feel so long and lonely. These are truly the 'one foot in front of the other' days.
Is Kara getting good pain meds? Remember if something isn't working for her, there are other options to dull the pain and the BMT team will have a pharmacist or dr who understands pain management.
It does get better,
Hugs from one Mom to another...
Kathy
One of many, many lurkers sending best wishes, I'm sure. Thank goodness we somehow lack the capacity to truly remember pain, and I look forward to this being a distant rapidly receding memory in the proverbial rear view mirror.
Hang in there!
As soon as Kara's counts start to come up the mouth sores will go away. I remember how miserable it was and thinking that the pain would never end. It will get better.
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