Monday, January 11, 2010
Biopsy tomorrow
For those of you who arent on facebook, I thought Id post an update. My adrenal mass that was found on my previous pet scan 4 weeks ago has grown 6mm. It is a small mass, but I have been taken off my trial drugs until the pathology has come back. The SUV of this lesion was 31.9, so Im pretty sure we are looking at relapse. So, Dr. O hasnt given me a game plan of whats next so we'll see. Im pretty upset that the trial drug has only worked for about 6 months. I think the size of the lesion now is about 2.8cm. I havent been having any other symptoms, except extreme anxiety. So Dr O doesnt know what this is, but he doesnt think its lymphoma, but Ive been told that before. So Im not very trusting. Anyways, I thought Id let you know whats going on in my world... I guess Im just going to have to get used to managing this disease instead of curing it. That pisses me off. I hope everyone else is doing well. Love you guys!
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Hey Kara
Just thought you should know that there are quite a few of us who have to manage our NHL, can't cure it! Mine can't be cured (until they find some new magic drug that will do that!)
And - it's OK! My doctor told me to look on it as a chronic disease, that I can get rid of, but I can go for (hopefully long!) periods when it's not there, or nothing happens.
I guess it could be seen as a bit like diabetes or asthma. We just have to live with it ... :)
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